I haven't written a health post in a very long time, in part because I've made no headway with getting the UVA allergy doctors to update their information on the tick meat allergy to include digestive symptoms, but also because I've been in a whirlwind courtship with several new issues that have left me in a daze.
Back in August, I wrote about being diagnosed with
costochondritis, an inflammatory issue affecting the rib cartilage. Eight months after suffering severe consequences of this on and off again pain I've dealt with since 2007, my doctor and I are certain that I have something a little more serious than that since costo is not supposed to be a chronic syndrome. In fact, my doctor feels certain that my fibromyalgia and costochondritis symptoms are directly related to that extremely crooked spine I've mentioned, and that I may not have either of those syndromes, which is good news and bad news. Good, since I can visit a spinal neurosurgeon and determine if surgery, or at least physical therapy, can improve my lot, but bad because as anyone with spinal issues will tell you, the spine is not something to monkey around with; however, at this point, the rib pain has pretty much stolen my life and if surgery can fix that, then sign me up.
So after I bucked up and realized I had to learn to live with the rib pain from hell, I started feeling a new kind of fatigue, one that Dr. Internet likes to call "crashing fatigue," meaning that all of a sudden, I would feel like my power switch had been shut off. I would be in the middle of work, riding in the car, shopping, or laundry and all of a sudden, "Bam!" Turned off and done for the day! And unlike fibromyalgia fatigue, rest didn't help. Of course, costo makes resting almost as painful as being active, but still... sleep did nothing to combat the fatigue. Then, after suffering hot flashes at the age of 34, having lengthy periods, and uncontrollable outbursts of copious tears, I considered that I might be undergoing extremely early perimenopause. I scheduled an appointment for blood work and it turned out that I didn't have menopause, but a sluggish thyroid. I began a hypothyroid medication and after about three weeks, the fatigue began to lessen, the hot flashes subsided, my period resumed its two day schedule, and the tears faded away. And believe it or not, the thyroid medication fixed something inside my digestive tract, allowing me to eat some of the things that I'd had only mild allergies to (less than 3mm), like chicken, lactose free milk, and some cheese. Can you believe it? Chicken! Cheese! I plan on having my allergies retested in a few months since this may mean that they have disappeared altogether, which is what the tick meat allergy is supposed to do.
Of course, the thyroid medication did nothing to ease the pain in my ribs, though. By late February, I'd had all I could stand, and once I realized that I was now giving up everyday activities (as opposed to the hobbies I'd given up for fibromyalgia and food allergies), I knew something had to be done. I scheduled yet another doctor's appointment, but before I could make it there, I came down with a splitting headache located in my right temple. It felt as if I were being stabbed in the temple every 20 seconds to five minutes and the whole right side of my head from the teeth up ached constantly. Within 24 hours of the headache, I had red welts over the painful area and couldn't stand by myself because it felt like I was being hit with a ton of bricks with every step. After I collapsed twice, my most awesome and perfect husband stayed home to help me to the bathroom and to the ER.
The poor ER doctor tried to help. He gave me
fentanyl, which increased the pain and didn't put me to sleep. He gave me
dilaudid, which increased the pain and didn't put me to sleep. So he sent me home with
valium in worse shape than I was in (and no, the valium didn't help). I mentioned that I had chronic inflammation trouble, but I was told that a prescription anti-inflammatory was too serious for an ER doctor to prescribe. So, they can give you some of the most powerful, addictive pain medication on earth, but not an anti-inflammatory. Go figure. =)
The next day, I had my already scheduled doctor's appointment. By then, it had been three days of constant headache along with my regular pain, so needless to say, I wasn't in good shape. But thankfully, my doctor was extremely sympathetic and determined that I wouldn't leave her office until my headache, at the very least, was under control. A shot of
imitrex left me in more pain and vomiting, but a shot of
toradol, an anti-inflammatory(!), knocked the headache right out. She made me an appointment with a spinal neurosurgeon after she checked out my curvy bod (and by "bod" I mean spine!) and gave me a prescription for
prochlorperazine, a nausea medication that is used for migraines, as well as the advice to take ibuprofen every four hours. But of course, me being me, I had to outdo myself, and by the next day, the red welts had been replaced by blisters and I had stinging pain all in the right side of my scalp and the headache was back in full force. Yes m'am, it was
shingles!
Shingles, just in case you didn't get that... Shingles! I will spare you the photos. Another trip to the doctor for yet another medication (
gabapentin, an anti-seizure drug that is often used for the nerve pain caused by shingles), but thankfully, the cocktail of drugs knocked out about 80% of the pain as long as I took them consistently. I had a little facial swelling, but I figured that was expected. It took another four days to feel somewhat alive again and able to tend to myself, and just as I was doing better, I woke up looking like I'd gone a few rounds with Mike Tyson (
Mike Tyson's Punch Out!!, anyone?). Turns out, the gabapentin, the main drug that was helping not only the shingle pain, but also the rib pain, was causing edema, so now I'm having to wean off of it over the next few days, but this caused me to have to see an ophthalmologist to determine if the shingle blisters were moving to my eye (they're not), who gave me another drug for the shingles virus (
famvir).
And that, my friends, is why I'm writing this post at 2:30 AM. One night without gabapentin, and I am back to my old self... I'm a stomach sleeper and anyone who is a stomach sleeper knows that you put your weight more on one side of the body depending on how you turn your head, so once again, if I turn my head to the left (on the right side of my face), my face feels like it's being used as a dart board from the shingles. If I turn my head to the right, most of my weight is being thrust onto the left side, which makes my ribs feel as if they are being crushed. I can't fall asleep on my back for more than five minutes at a time, so what's a girl to do? Blog!
Looking on the bright side, I have very few blisters, so it's not like my entire face is covered by monstrous sores, which is really important since I'm vain about my looks. The shingles aren't affecting my vision, which is obviously the most significant thing. There are some wonderful drugs in the world and I am taking most of them right now. And last but not least, I have the most kick ass, stupendous, rocking spouse in the world that can do wonders with grilled cheese sandwiches and tomato soup.
Life and pain will go on, and through it all, I'm happy to still be kicking.